Moday Sammie had her developmental follow up at the clinic and things seemed to go really well.....up until we met with the nurse practioner. I was advised that Samantha seemed to be doing really well however she wanted to ask some more medical questions. As she aksed her questions I answered them all with such great pride for how well my daughter is doing, but that feeling was smashed, the nurse practioner told me that she does not want to discharge Samantha yet and that they want to keep an eye on her some more. Also, that we should have her tested for Cystic fibrosis becuase Sammie seems to be showing some signs of it. Well....after doing much resurch on that, I was surprised the nurse was so incredably non-chalant about telling me about this. It is horriable, it put me in a deep depression.
So we meet with Samanthas lung specialst and I brought up the situation to her, I was shocked to hear that this was not the first time the possibiblity has crossed a specialsit mind. However, her lung specialist told me that she did not think Sammie had it but she did want to rule it out....basiclly she thinks its possible but does not want to freak me out yet.
So here I am waiting for the test, not knowing when its going to be done and what the outcome is going to be......I cant even begin to explaine my anxity, fear and sorrow. I am praying to god that Sammie does not have it and that the explanation for Sammies medical problems is all prematuity.
Today, wednesday, we went to get her eye exame and......well she needs glasses, we picked the cutest glasses we could find for a 2 1/2 year old but it was still a bit heart breaking to me. Next is her hearing test and I am hoping that its going to be normal, however the last one we had I was told she needs tubes in her ears and she has quite a bit of hearing loss. That appointment is not for another 6 months....so I will have to wait and see.
You know, I still am greatful that even thought my little girl has some eye, ear, lung, growth issues she is still a very SMART and beautiful little girl and I pray that things will only get better for her......and us.
God...please be with us.
Kaitlyn and her vocal cord Reinnveration surgery
10 years ago

1 comment:
It will!!
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